Fibromyalgia and Janet L.
I’ve had fibromyalgia for 20 years, although it wasn’t diagnosed until recently. Most people who have fibromyalgia do not get properly diagnosed until they have had it for at least seven years. That’s because it is a progressive disease, and when it starts out it might only manifest as a stiff neck or isolated pain and general fatigue. The symptoms, in other words, are so general they can be interpreted as the flu, tired muscles, a sleep disorder, or any number of less serious problems.
When I first started experiencing the pain of fibromyalgia I was living in the mountains in Washington State. In that often cold, usually moist climate my body behaved like a barometerwhenever the weather changed my body would feel it. Whether it was dampness, cold, a change in the windany change would register in my body as pain. I went to rheumatologists, chiropractors, all kinds of doctors about my pain, but none of them had a solution for me.
One doctor started me on cortisone shots. We reached a point where he was shooting cortisone into 42 muscles in my back every day. He finally said, “Janet, I can’t do this any more. You’ve become a human pincushion.”
I would have good days and bad days. On my good days I was energetic and took part in family activities with great zest. On bad days I wouldn’t be able to get dressed without stopping a few times to lie down and rest and get my energy back.
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